pOST-PICu:Pediatric Outcomes Studies after PICU
Group Designation: Subgroup
POST-PICU is a subgroup of the Pediatric Acute Lung Injury and Sepsis Investigators (PALISI) network with a mission to promote collaboration, facilitate scientific mentorship, and engage in research that advances outcomes after critical illness in childhood
PCP engagement in post-intensive care recovery:
This multicenter prospective cohort study will use surveys and focus groups with a broad range of pediatric practices to better understand community pediatricians’ familiarity with PICS-p, common gaps in care of survivors of pediatric critical illness, best practices to ensure quality follow-up care, and feasibility of administering outcome measures.
PICU follow-up clinic registry
We are working to establish a registry of sites with post-ICU follow-up programs with information about patient populations including multidisciplinary resources, clinic structures, and outcomes evaluated aimed at knowledge sharing and research collaboration.
Mobile phone screening for family post-intensive care syndrome symptoms
This study uses a mobile phone survey to screen parents for depression, anxiety, PTSD, and health-related quality of life via text message.
Post-Intensive Care Syndrome-Pediatrics (PICS-p)
This multicenter prospective longitudinal cohort study is enrolling 500 PICU patients and their families at sites across the United States with multiple follow-up evaluations over the course of the two years following PICU admission to evaluate outcomes across a range of health domains.
Pediatric Critical Care Core Outcomes Set and Core Outcomes Measurement Set
This multi-year project led by the POST-PICU Investigators in collaboration with the Collaborative Pediatric Critical Care Research Network (CPCCRN) included a scoping review of all published literature evaluating post-discharge outcomes following pediatric critical care, a Delphi process involving research, clinical, and family/patient advocate stakeholders to develop a recommended set of outcomes to assess following PICU care, and a final Delphi process involving a multidisciplinary expert panel to recommend outcome measures for use in research and clinical care. This effort has resulted in multiple publications with more in development.
Website: www.post-picu.org (Coming Soon)
Connect with Post-Picu
Contact Person: Mary Hartman, MD, MPH